How will my child develop??

 

 

DISCLAIMER

All information is not professional and should not be taken as medical information.

 While all care has been taken the information contained is not written

by a medical professional and as such should not replace the valuable and personal

information of your own health care professionals.

 

 

 

 

 

 

 

 

 

 

Each child is an individual and can never be expected to develop in any particular way. Like parenting, society agrees there is no book ever written explaining how to be a parent. There are only books which give advice and tell of the typical milestones of development with children. Parenting is a, learn as you go career, and no matter how brilliant minded an author is, that book will never be written. In the same way these wonderful children will all develop at their own rate and doing their own things, so parents have to learn as they go. Though I can give you ideas of what roads you may possibly be crossing with having a child that has Trisomy 9.

 

The first stepping stone to being a parent for a special needs child, is acknowledging their disorder. It is very normal for parents to turn their backs on accepting the fact that their child is different. Once you have accepted this then you will be able to enjoy the wonderful rewards there is of having such a gift.

 

The most common trait for a Trisomic child is global delay development, meaning the overall development of the child is at a slower then normal rate. Many of the children have low muscle tone which consequently results in the child taking much longer to reach the physical milestones (crawling/walking etc). The children have many little traits which make very little difference in development, more so just annoying hassles. For example most of the children suffer ear infections, constipation, difficulty eating in the early days etc. (If you are interested in reading up more on this side of things, then refer to the survey summary)

 

A good percentage of the children suffer very little internal defects, though some have a hole in their heart. This condition is quite often dealt with either by it closing on its own over time or otherwise using a pacemaker. There has been no study for the older individuals so there is no estimated life span, though with my own experience, they seem to live a normal length of time. Once the children have developed the physical milestones, they seem to be able to cope out in the world much like a Down's Syndrome child. The one particular difference with Down's compared to Trisomy 9 kids is they seem to have much trouble getting the brain to send a signal to their voices boxes, and consequently have troubles with their speech. It is recommended to start sign language as soon as possible so the child becomes less frustrated when attempting to get their word across. Many of them seem to start talking more so about teenage years, though again it varies. From my own experiences having your child in main stream actually helps them develop quicker including the speech as they copy other children.

 

It is not uncommon for the children to take longer then average to become toilet trained, which of course is awkward for the parents. Many of them still as adults do not have any control at night time. It is believed that all the body muscles are completely relaxed while asleep and results in wetting the bed. Many of the children at young teenage years have been diagnosed with osteoporosis which is thought to be caused from a delayed calcification of the bones. So it is advised that your child have plenty of calcium at a very young age. One thing is many of the children have a high pain threshold and tend to burn themselves without even noticing it. I personally advise to keep a very close watch on the child when near any dangerous items like ovens etc. Because my son can't feel pain very much, he doesn't understand what all the hassle is over each time I tell him to get away from my oven. Where as my other son, I intentionally had him touch a warm oven door to understand why he shouldn't touch it. Some of the children have no fear of falling which applies in the same sense as heat.

 

With the child's behaviour, most of them seem to be of very happy nature. Many are very sociable and affectionate to others. Though a lot of them are very stubborn and won't co-operate at times. One very interesting thing is that the children have an extraordinary memory, so don't hide their Easter eggs while they are peeking.

 

In general many of the children grow up to be pleasant, happy and sociable adults who learn to look after themselves to a certain extent. Though I have not known any that are fully independent. From my own experiences I can definitely say that you have a wonderful child who will bring many rewards with the odd tear to your face. Many families say that they could not imagine raising a child with special needs, though I respond by saying "you don't know if the shoe fits until you have tried it on". There is nothing I personally would rather be doing then parenting such a wonderful special child like mine.